Improving treatment choices for children with nephrotic syndrome from diverse backgrounds
Official title: Supporting shared decision making in childhood nephrotic syndrome to improve care for children of racial and ethnic minority and low income background
Funded at Emory University · NIH-10978376 · Data updated 2026-11-12
This study is all about helping families of children with nephrotic syndrome, especially those from diverse backgrounds, make better choices about their treatment by improving communication with doctors and understanding their experiences.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | September 30, 2024 |
| Project end | July 31, 2029 |
| Funding year | 2024 |
| Award (this year) | $285,658 |
| NIH project number | 1R01HS029677-01A1 |
| Project ID | NIH-10978376 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children diagnosed with childhood nephrotic syndrome, particularly those from racial and ethnic minority groups or low-income families.
✕Less likely to help
Patients who do not have childhood nephrotic syndrome or those from higher socioeconomic backgrounds may not benefit from this research.
What this research studies
This research aims to enhance shared decision-making for children with childhood nephrotic syndrome, particularly focusing on those from racial and ethnic minority and low-income backgrounds. By developing tools that facilitate communication between healthcare providers and families, the project seeks to empower patients and their families in selecting treatment options that align with their preferences and needs. The study will involve in-depth interviews with parents, adolescents, and healthcare providers to gather insights on their experiences and challenges in treatment selection. The ultimate goal is to improve patient-centered care and health outcomes for these vulnerable populations.
Why it matters
Potential benefit: If successful, this research could lead to better treatment adherence and improved health outcomes for children with nephrotic syndrome.
How similar studies have gone: Previous research has shown that enhancing shared decision-making can significantly improve treatment outcomes in various chronic conditions, indicating a promising approach in this context.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Wang, Chia-Shi — Emory University
- Study coordinator: Wang, Chia-Shi
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.