Improving the evaluation of children with complex medical needs
Official title: CCC EQUATE (Equitable Quantification And Task Evaluation)
Funded at Children's Hosp of Philadelphia · NIH-11063119 · Data updated 2026-11-12
This study is looking at how we can better understand and support children with serious health challenges by improving the way we categorize their medical conditions, making sure that all kids, regardless of their background, get the care they need.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hosp of Philadelphia NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | April 1, 2024 |
| Project end | March 31, 2027 |
| Funding year | 2025 |
| Award (this year) | $350,544 |
| NIH project number | 5R01HS029867-02 |
| Project ID | NIH-11063119 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children with complex chronic conditions who may benefit from improved healthcare evaluation and services.
✕Less likely to help
Patients without complex chronic conditions or those who do not fall under the defined categories of medical complexity may not benefit from this research.
What this research studies
This research focuses on children with medical complexity, a vulnerable group at high risk for serious health issues. It aims to evaluate and improve the existing system used to categorize these children's complex chronic conditions (CCCs) to ensure it accurately reflects their health status and needs. The study will assess how well the CCC system performs in various tasks and investigate any biases related to socioeconomic status and race that may affect the identification of these children. By addressing these concerns, the research seeks to enhance the quality of care provided to children with complex medical conditions.
Why it matters
Potential benefit: If successful, this research could lead to more accurate identification and better care for children with complex medical needs.
How similar studies have gone: While the CCC system has been widely used, this research aims to address specific concerns that have not been thoroughly evaluated, making it a novel approach.
Where this research is happening
-
Children's Hosp of Philadelphia
Philadelphia, United States Active
Researchers
- Principal investigator: Feudtner, John Chris — Children's Hosp of Philadelphia
- Study coordinator: Feudtner, John Chris
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.