Improving social behaviors in individuals with genetic intellectual and developmental disabilities

Promoting Prosocial Behavior in Syndromic Intellectual and Developmental Disabilities

['FUNDING_R01'] · RUSH UNIVERSITY MEDICAL CENTER · NIH-10886616

This study is looking at how to make mental health support better for people with intellectual and developmental disabilities, especially after the challenges brought on by COVID-19, by finding new ways to help them communicate and interact positively with others.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorRUSH UNIVERSITY MEDICAL CENTER (nih funded)
Locations1 site (CHICAGO, UNITED STATES)
Trial IDNIH-10886616 on ClinicalTrials.gov

What this research studies

This research focuses on enhancing access to mental and behavioral health services for individuals with syndromic intellectual and developmental disabilities (IDDs), particularly in the wake of COVID-19 disruptions. The project aims to adapt existing behavior therapy techniques to better suit the unique needs of this vulnerable population, many of whom face significant communication challenges. By utilizing a person-centered approach, the research will explore effective strategies to replace challenging behaviors with positive social interactions. The goal is to create tailored interventions that can be implemented in community settings to improve the quality of life for these individuals.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals aged 0-11 and 21+ years diagnosed with syndromic IDDs, such as Angelman Syndrome or 22q13 deletion syndrome.

Not a fit: Patients without intellectual or developmental disabilities, or those not diagnosed with syndromic IDDs, may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved social communication and behavior in individuals with syndromic IDDs, enhancing their overall well-being and integration into the community.

How similar studies have performed: Previous research has shown promise in adapting behavioral therapies for individuals with IDDs, suggesting that this approach could yield beneficial outcomes.

Where this research is happening

CHICAGO, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: 22q13 deletion syndrome, Angelman Syndrome

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.