Improving self-management in adolescents with sickle cell disease
Official title: A socio-ecological approach for improving self-management in adolescents with SCD
Funded at Cincinnati Childrens Hosp Med Ctr · NIH-10934578 · Data updated 2026-11-12
This study is all about helping teens with sickle cell disease learn to take better care of themselves through a fun program called SCThrive, which includes group therapy and a helpful app, so they can feel more confident and supported in managing their health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Cincinnati Childrens Hosp Med Ctr NIH-funded |
| Lab location | 1 site (Cincinnati, United States) |
| Project start | September 25, 2023 |
| Project end | June 30, 2028 |
| Funding year | 2024 |
| Award (this year) | $599,363 |
| NIH project number | 5R01NR020781-02 |
| Project ID | NIH-10934578 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adolescents aged 12 to 20 years old who are diagnosed with sickle cell disease.
✕Less likely to help
Patients outside the age range of 12 to 20 years or those without a diagnosis of sickle cell disease may not benefit from this research.
What this research studies
This research focuses on enhancing self-management skills in adolescents with sickle cell disease (SCD) through a socio-ecological approach. It involves a novel intervention called SCThrive, which combines group therapy sessions with a mobile app designed to empower young patients. The study aims to address barriers to care that these adolescents face, such as discrimination and financial hardship, by improving their knowledge, skills, and self-efficacy in managing their condition. By participating, adolescents will have the opportunity to engage in a supportive environment that fosters better health outcomes.
Why it matters
Potential benefit: If successful, this research could lead to improved health management and quality of life for adolescents with sickle cell disease.
How similar studies have gone: Previous research has shown promising results with similar ehealth interventions aimed at improving self-management in chronic conditions, indicating potential for success in this approach.
Where this research is happening
-
Cincinnati Childrens Hosp Med Ctr
Cincinnati, United States Active
Researchers
- Principal investigator: Crosby, Lori E — Cincinnati Childrens Hosp Med Ctr
- Study coordinator: Crosby, Lori E
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.