Improving self-management for people with epilepsy in Uganda
Official title: Self-management Intervention for Reducing Epilepsy Burden among Ugandans with Epilepsy
Funded at Makerere University College of Health Sciences · NIH-10893487 · Data updated 2026-11-12
This study is all about helping people with epilepsy in Uganda live better lives by giving them support and tools to manage their condition, so they can feel less isolated and more in control of their health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Makerere University College of Health Sciences NIH-funded |
| Lab location | 1 site (Kampala, Uganda) |
| Project start | August 1, 2023 |
| Project end | July 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $379,048 |
| NIH project number | 5R01NS129041-02 |
| Project ID | NIH-10893487 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals living with epilepsy in Uganda who face challenges related to medication adherence and social support.
✕Less likely to help
Patients with epilepsy who are already receiving comprehensive care and support may not benefit from this intervention.
What this research studies
This research focuses on enhancing the quality of life for individuals with epilepsy in Uganda through a self-management intervention. It aims to address challenges such as social isolation, stigma, and poor medication adherence by implementing a culturally tailored program called SMART-U. Participants will receive ongoing assessments and support to help them manage their condition more effectively. The study seeks to empower patients by providing them with the tools and knowledge necessary to improve their health outcomes.
Why it matters
Potential benefit: If successful, this research could significantly improve the quality of life for individuals with epilepsy by reducing stigma and enhancing self-management skills.
How similar studies have gone: Previous pilot studies have shown promising results with similar self-management approaches, indicating potential for success in this larger implementation.
Where this research is happening
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Makerere University College of Health Sciences
Kampala, Uganda Active
Researchers
- Principal investigator: Kaddumukasa, Mark — Makerere University College of Health Sciences
- Study coordinator: Kaddumukasa, Mark
Related research
Other NIH-funded projects on the same topics.
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Economic evaluation of MEW Network epilepsy self-management programs for broad adoption
This project tests how cost-effective two epilepsy self-management programs (UPLIFT and PACES) are when used in real-world healthcare and community settings, to help people with epilepsy live better.
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Economic analysis of the MEW self-management program for epilepsy (MINDSET) in real-world settings
This grant studies how a proven epilepsy self-management program can be implemented in communities and clinics, and how its costs and benefits stack up.
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Self-management Intervention to Reduce Epilepsy Burden in Ugandans with Epilepsy
A program helps people with epilepsy in Uganda manage their condition daily to improve quality of life and reduce stigma.
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Costs and value of the MINDSET epilepsy self-management program
This project compares the costs and benefits of the MINDSET self-management program for people with epilepsy in clinic and community settings.
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Improving daily life for Ugandans living with epilepsy
This project is developing a self-management program to help people with epilepsy in Uganda better manage their condition and improve their quality of life.
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Evaluating the cost-effectiveness of a self-management program for epilepsy.
This study is looking at how the MINDSET program can help people with epilepsy manage their condition better and whether it’s worth the cost, so that patients can enjoy a better quality of life.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.