Improving security and privacy in genomic data sharing
A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem
This study is working on new ways to make it easier for scientists to use genetic information while keeping your personal data safe, so that everyone can benefit from research without worrying about privacy.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Illinois at Urbana-Champaign NIH-funded |
| Lab location | 1 site (Champaign, United States) |
| Project ID | NIH-10748366 on NIH RePORTER |
What this research studies
This research aims to enhance the accessibility of genomic data for scientific research while ensuring participant privacy and data security. It focuses on developing technologies that allow genomic analysis to be performed on data stored by participants themselves, thereby reducing the risks associated with data re-identification. The project will also explore legal and regulatory frameworks to support these advancements and assess how researchers and participants can effectively collaborate. By utilizing innovative methods like digital signatures and data masking, the research seeks to create a more open and equitable genomic research environment.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals who have their own genomic data, such as those who have undergone direct-to-consumer genetic testing.
Not a fit: Patients who do not have access to genomic data or who are not interested in participating in genomic research may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to safer and more widespread use of genomic data in scientific studies, ultimately accelerating advancements in personalized medicine.
How similar studies have performed: Other research has shown promise in improving data privacy and accessibility in genomic studies, indicating that this approach could be effective.
Where this research is happening
Champaign, United States
- University of Illinois at Urbana-Champaign — Champaign, United States (Active)
Researchers
- Principal investigator: Gunter, Carl a — University of Illinois at Urbana-Champaign
- Study coordinator: Gunter, Carl a
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.