Improving reproductive health knowledge for young adults with sickle cell disease or trait
CHOICES for Sickle Cell Reproductive Health: RCT of a Preconception Intervention Model for a Single Gene Disorder
This study is testing a friendly online program called CHOICES to help young adults with sickle cell disease or trait learn about reproductive health and make informed decisions about their future parenting plans.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Florida NIH-funded |
| Lab location | 1 site (Gainesville, United States) |
| Project ID | NIH-10881773 on NIH RePORTER |
What this research studies
This research aims to enhance reproductive health knowledge and behaviors among young adults with sickle cell disease (SCD) or sickle cell trait (SCT) through a web-based intervention called CHOICES. The program is designed to follow up on genetic counseling, helping participants understand genetic inheritance and articulate their parenting plans. By engaging with tailored multimedia content, participants can learn to make informed reproductive health decisions that align with their goals. The study will compare the effectiveness of the CHOICES intervention against a standard e-Book control to assess improvements in knowledge and behavior.
Who could benefit from this research
Good fit: Ideal candidates for this research are young adults with sickle cell disease or sickle cell trait who are considering parenthood.
Not a fit: Patients who do not have sickle cell disease or trait, or those who are not planning to have children, may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower young adults with SCD or SCT to make informed reproductive choices, potentially reducing the risk of having children affected by sickle cell disease.
How similar studies have performed: Previous research has shown promise in using multimedia interventions for health education, indicating potential for success with this approach.
Where this research is happening
Gainesville, United States
- University of Florida — Gainesville, United States (Active)
Researchers
- Principal investigator: Wilkie, Diana J — University of Florida
- Study coordinator: Wilkie, Diana J
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.