Improving privacy in sharing genomic data
Enhancing open data sharing for functional genomics experiments: Measures to quantify genomic information leakage and file formats for privacy preservation
['FUNDING_R01'] · YALE UNIVERSITY · NIH-10913541
This study is looking at ways to share genetic information safely so that researchers can learn more about diseases without putting anyone's personal details at risk, making sure your privacy is protected while still helping advance medical knowledge.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | YALE UNIVERSITY (nih funded) |
| Locations | 1 site (NEW HAVEN, UNITED STATES) |
| Trial ID | NIH-10913541 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the privacy of genomic data sharing, which is crucial for understanding diseases and conditions. It aims to measure how much sensitive information can leak from different types of genomic data files and develop new file formats that minimize this risk. By analyzing various genomic data types and implementing privacy-preserving algorithms, the project seeks to ensure that valuable genomic information can be shared without compromising individual privacy. This work is essential for advancing functional genomics while protecting patient confidentiality.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals whose genomic data is being used in studies related to various diseases and conditions.
Not a fit: Patients who do not have their genomic data shared or are not involved in genomic studies may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could enable safer sharing of genomic data, leading to better disease understanding and treatment options.
How similar studies have performed: While there has been some research on privacy in data sharing, this approach is innovative and aims to address specific gaps in the field.
Where this research is happening
NEW HAVEN, UNITED STATES
- YALE UNIVERSITY — NEW HAVEN, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: GERSTEIN, MARK BENDER — YALE UNIVERSITY
- Study coordinator: GERSTEIN, MARK BENDER
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Cancers