Improving privacy in sharing clinical data between laboratories
Official title: SOCAL: Privacy-protecting Sharing Of Clinical Data Across Laboratories
Funded at Yale University · NIH-11110075 · Data updated 2026-11-12
This study is working on new ways to keep your health information safe while still allowing doctors and researchers to share important data that can help improve your care and treatment.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project start | July 1, 2024 |
| Project end | June 30, 2026 |
| Funding year | 2024 |
| Award (this year) | $343,314 |
| NIH project number | 7R01EB031030-03 |
| Project ID | NIH-11110075 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals whose health data could contribute to predictive modeling for better clinical outcomes, particularly those with conditions requiring extensive data analysis.
✕Less likely to help
Patients who do not have significant clinical data or whose conditions are not represented in the predictive models may not benefit from this research.
What this research studies
This research focuses on enhancing the privacy and security of personal health information when sharing clinical data across different healthcare institutions and laboratories. It aims to develop advanced technologies that work alongside new policies to address privacy concerns while enabling predictive analytics to improve patient care. By utilizing distributed methods to exchange predictive models instead of sensitive patient data, the project seeks to enhance the quality of clinical research and patient outcomes without compromising individual privacy.
Why it matters
Potential benefit: If successful, this research could lead to safer and more effective sharing of clinical data, ultimately improving patient health outcomes.
How similar studies have gone: Previous research has shown promise in using distributed methods for data sharing while maintaining privacy, indicating that this approach could be effective.
Where this research is happening
-
Yale University
New Haven, United States Active
Researchers
- Principal investigator: Kuo, Tsung-Ting — Yale University
- Study coordinator: Kuo, Tsung-Ting
Related research
Other NIH-funded projects on the same topics.
-
Aging Well with HIV: Alcohol, Risk Reduction, and Education Center (AWAR3E)
A center at Yale is exploring how aging with HIV interacts with alcohol use to create inflammation and frailty, with the goal of finding biomarkers and potential treatments.
-
Community Health Worker–Led Hypertension Prevention and Control in Nepal
A community health worker–driven approach in Nepal aims to prevent and control high blood pressure among adults by bringing education and care directly to communities and homes.
-
Community health worker-led hypertension prevention and control in Nepal
A community health worker–led program in Nepal aims to help adults prevent and better control high blood pressure through home visits, education, and ongoing support.
-
Adapting a mobile health tool to boost HIV outcomes for older adults with HIV in Ukraine
A mobile health platform called PositiveLinks would be adapted for older adults with HIV in Ukraine to help them stay engaged in care and improve treatment success.
-
Behavioral and neural links between spoken language sounds and written words in young children
This grant studies how young children learn from listening and reading to improve literacy, by looking at how sound patterns transfer to written language.
-
Understanding how autoimmunity causes myasthenia gravis
This project looks at why the immune system attacks the nerve-muscle connection in myasthenia gravis and how different patient groups are affected.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.