Improving preventive care for children with sickle cell anemia
Official title: Opportunities to optimize the receipt of preventive services among children with sickle cell anemia: A Mixed Methods Approach
Funded at University of Michigan at Ann Arbor · NIH-10929946 · Data updated 2026-11-12
This study is looking to find out why many kids with sickle cell anemia aren't getting the check-ups and treatments they need, so we can come up with better ways to help them stay healthy and feel their best.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Michigan at Ann Arbor NIH-funded |
| Lab location | 1 site (Ann Arbor, United States) |
| Project start | September 1, 2021 |
| Project end | August 31, 2025 |
| Funding year | 2024 |
| Award (this year) | $366,870 |
| NIH project number | 5R01HS027785-04 |
| Project ID | NIH-10929946 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children diagnosed with sickle cell anemia who may not be receiving recommended preventive services.
✕Less likely to help
Patients without a diagnosis of sickle cell anemia or those who are already receiving adequate preventive care may not benefit from this research.
What this research studies
This research aims to enhance the delivery of preventive services for children with sickle cell anemia by identifying barriers to care and developing targeted interventions. It will explore why only a small percentage of these children receive necessary screenings and medications, despite national guidelines recommending them. By using a mixed methods approach, the study will gather both quantitative and qualitative data to understand the healthcare delivery challenges faced by these patients. The ultimate goal is to improve health outcomes and quality of life for children affected by this condition.
Why it matters
Potential benefit: If successful, this research could significantly increase the number of children with sickle cell anemia receiving essential preventive care, thereby reducing serious health complications.
How similar studies have gone: Previous research has shown that targeted interventions can improve healthcare delivery for chronic conditions, suggesting potential success for this approach.
Where this research is happening
-
University of Michigan at Ann Arbor
Ann Arbor, United States Active
Researchers
- Principal investigator: Reeves, Sarah Leasure — University of Michigan at Ann Arbor
- Study coordinator: Reeves, Sarah Leasure
Related research
Other NIH-funded projects on the same topics.
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Hydroxyurea to help children with sickle cell anemia in Africa
A pediatric study tests hydroxyurea treatment for young children with sickle cell anemia in several African countries to see if it can reduce illness and improve health.
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Hydroxyurea for Children with Sickle Cell in Africa
A pilot study tests hydroxyurea in young children with sickle cell disease across several African countries to see if it can reduce illness and hospital visits.
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Hydroxyurea for Children with Sickle Cell Disease in Africa
A safe and feasible use of hydroxyurea for young children with sickle cell disease in several African countries to reduce illness and improve daily life.
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Hypoxemia during Sleep in Sickle Cell Disease: How Common is It and How Might Treatments Help
This study looks at how low oxygen during sleep affects adults with sickle cell disease and how they respond to therapy across multiple urban and rural sites.
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Hypoxic red blood cells for sickle cell anemia using the Hemanext ONE system
A new approach using special low-oxygen red blood cells from the Hemanext ONE system is being tested to help adults and children with sickle cell anemia who rely on frequent transfusions.
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Hydroxyurea for Children with Sickle Cell Anemia in Africa
A safety and feasibility pilot study tests giving hydroxyurea to young children with sickle cell anemia in sub-Saharan Africa to reduce illness and death.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.