Improving patient engagement and communication in genetic testing
Core C - Education/Outreach
This study is all about helping doctors explain genetic test results in a way that's easy to understand for patients, especially those who might not know much about genetics, so they can make better health decisions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Massachusetts General Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-11124182 on NIH RePORTER |
What this research studies
This research focuses on enhancing the way healthcare providers communicate genetic test results to patients, particularly those with limited understanding of genetic concepts. By collaborating with patient groups, the project aims to create effective educational resources and guidance for clinicians. The approach involves using principles from cognitive psychology to design clear visual presentations of genetic information, ensuring that patients can better understand their results and make informed decisions about their health. The initiative also seeks to establish strong partnerships with patient communities to ensure that their needs and priorities are addressed in clinical practice.
Who could benefit from this research
Good fit: Ideal candidates for this research include patients undergoing genetic testing who may struggle with understanding complex genetic information.
Not a fit: Patients who are already well-versed in genetic concepts and have no difficulty understanding genetic test results may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and communication of genetic test results, empowering patients to make informed health decisions.
How similar studies have performed: Previous research has shown that effective communication strategies can significantly improve patient understanding and engagement in healthcare settings.
Where this research is happening
Boston, United States
- Massachusetts General Hospital — Boston, United States (Active)
Researchers
- Principal investigator: Dwyer, Andrew Alois — Massachusetts General Hospital
- Study coordinator: Dwyer, Andrew Alois
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.