Improving patient care for vocal fold paralysis through personalized outcome measures
Official title: CoPE II: Individualizing patient-reported outcomes in patient care for vocal fold paralysis in the clinic and in research
Funded at University of Wisconsin-Madison · NIH-10931717 · Data updated 2026-11-12
This study is all about finding a better way to understand how people with vocal fold paralysis feel about their condition and treatment, so we can create personalized care plans that really fit each person's unique needs.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Wisconsin-Madison NIH-funded |
| Lab location | 1 site (Madison, United States) |
| Project start | September 18, 2023 |
| Project end | August 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $467,274 |
| NIH project number | 5R01DC021431-02 |
| Project ID | NIH-10931717 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals aged 21 and older who are experiencing vocal fold paralysis and its associated symptoms.
✕Less likely to help
Patients with conditions unrelated to vocal fold paralysis or those under 21 years old may not benefit from this research.
What this research studies
This research focuses on creating a personalized approach to interpreting patient-reported outcome measures (PROMs) for individuals with vocal fold paralysis. By developing an individualized minimally clinically important difference (MCID) for each patient, the study aims to enhance the assessment of patient preferences and treatment responsiveness. The research will evaluate how various factors, such as the severity of the condition and individual characteristics, influence the interpretation of PROMs, ultimately guiding clinical decisions tailored to each patient's needs. This approach is particularly relevant for patients with vocal fold paralysis, as their symptoms and treatment responses can vary widely.
Why it matters
Potential benefit: If successful, this research could lead to more effective and personalized treatment plans for patients with vocal fold paralysis, improving their quality of life.
How similar studies have gone: Previous research has shown promise in developing individualized approaches to patient-reported outcomes, indicating that this methodology could be effective.
Where this research is happening
-
University of Wisconsin-Madison
Madison, United States Active
Researchers
- Principal investigator: Francis, David O. — University of Wisconsin-Madison
- Study coordinator: Francis, David O.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.