Improving palliative care for people with Parkinson's disease and related disorders in Black and Hispanic communities
Official title: Building Capacity to Meet the Palliative Care Needs of People with Parkinson Disease, Lewy Body Dementia and Related Disorders living in Black and Hispanic Communities
Funded at University of Rochester · NIH-11021329 · Data updated 2026-11-12
This study is all about improving care for people with Parkinson's disease and Lewy Body Dementia, especially in Black and Hispanic communities, by understanding their specific needs and finding better ways to support them and their families.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project start | March 1, 2025 |
| Project end | January 31, 2028 |
| Funding year | 2025 |
| Award (this year) | $231,000 |
| NIH project number | 1R34NS139965-01 |
| Project ID | NIH-11021329 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals aged 65 and older who are living with Parkinson's disease, Lewy Body Dementia, or related disorders, particularly those from Black and Hispanic communities.
✕Less likely to help
Patients who do not have Parkinson's disease, Lewy Body Dementia, or related disorders, or those who are not part of the targeted communities may not benefit from this research.
What this research studies
This research focuses on enhancing palliative care for individuals with Parkinson's disease, Lewy Body Dementia, and similar disorders, particularly within Black and Hispanic communities. It aims to identify and address the unique needs of these populations, which are often overlooked in traditional care models. By engaging with community members and utilizing culturally-tailored approaches, the project seeks to improve the quality of life for patients and their caregivers. The methodology includes community engagement and assessment of barriers to care, ensuring that the solutions developed are relevant and effective.
Why it matters
Potential benefit: If successful, this research could lead to improved palliative care services that better meet the needs of patients with Parkinson's disease and related disorders, ultimately enhancing their quality of life.
How similar studies have gone: Previous research has shown that palliative care can significantly improve outcomes for patients with neurodegenerative diseases, although this specific approach targeting underserved communities is novel.
Where this research is happening
-
University of Rochester
Rochester, United States Active
Researchers
- Principal investigator: Kluger, Benzi M — University of Rochester
- Study coordinator: Kluger, Benzi M
Related research
Other NIH-funded projects on the same topics.
-
Better palliative care for Black and Hispanic people with Parkinson's and Lewy body dementia
Designing culturally-tailored palliative care programs to better meet the needs of Black and Hispanic adults living with Parkinson's disease and Lewy body dementia.
-
Integrated palliative care for Parkinson’s disease and PD dementia: reducing low-value care and disparities
A study in people with Parkinson’s disease or Parkinson disease dementia tests how integrating palliative care can cut unnecessary hospitalizations and disparities.
-
Examining how integrated palliative care affects health outcomes in Parkinson's disease and Lewy body dementia.
This study is looking at how adding palliative care can help people with Parkinson's disease and Parkinson's disease dementia feel better by managing their symptoms and planning their care, so they can avoid unnecessary hospital visits and get the support they need.
-
Palmitoyltransferase and GBA1 function restoration in Parkinson’s and Lewy body dementia
A fast-moving study looks at whether tweaking a fat-attachment process on proteins can restore healthy enzyme function and slow the progression of Parkinson’s disease and Lewy body dementia.
-
Palliative care at home for people with dementia
A team-based home palliative care program using community health workers, nurses, and social workers to support older adults with advanced dementia and their family caregivers.
-
Improving palliative care for older adults with dementia who speak limited English
This study is looking at the difficulties older adults with Alzheimer's and similar conditions who don't speak much English face when trying to get palliative care, and it aims to find ways to make communication better and improve their quality of life.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.