Improving palliative care for people with Parkinson's disease and related disorders in Black and Hispanic communities
Building Capacity to Meet the Palliative Care Needs of People with Parkinson Disease, Lewy Body Dementia and Related Disorders living in Black and Hispanic Communities
['FUNDING_OTHER'] · UNIVERSITY OF ROCHESTER · NIH-11021329
This study is all about improving care for people with Parkinson's disease and Lewy Body Dementia, especially in Black and Hispanic communities, by understanding their specific needs and finding better ways to support them and their families.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-11021329 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing palliative care for individuals with Parkinson's disease, Lewy Body Dementia, and similar disorders, particularly within Black and Hispanic communities. It aims to identify and address the unique needs of these populations, which are often overlooked in traditional care models. By engaging with community members and utilizing culturally-tailored approaches, the project seeks to improve the quality of life for patients and their caregivers. The methodology includes community engagement and assessment of barriers to care, ensuring that the solutions developed are relevant and effective.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals aged 65 and older who are living with Parkinson's disease, Lewy Body Dementia, or related disorders, particularly those from Black and Hispanic communities.
Not a fit: Patients who do not have Parkinson's disease, Lewy Body Dementia, or related disorders, or those who are not part of the targeted communities may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved palliative care services that better meet the needs of patients with Parkinson's disease and related disorders, ultimately enhancing their quality of life.
How similar studies have performed: Previous research has shown that palliative care can significantly improve outcomes for patients with neurodegenerative diseases, although this specific approach targeting underserved communities is novel.
Where this research is happening
ROCHESTER, UNITED STATES
- UNIVERSITY OF ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: KLUGER, BENZI M — UNIVERSITY OF ROCHESTER
- Study coordinator: KLUGER, BENZI M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.