Improving outreach and education for Alzheimer's research in adults with Down syndrome
Core B: Alzheimer's Disease Down Syndrome Outreach Recruitment and Education (ADDORE)
This study is all about getting more adults with Down syndrome involved in Alzheimer's research by creating helpful materials and working with community groups to make sure everyone understands how important it is to participate.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pittsburgh at Pittsburgh NIH-funded |
| Lab location | 1 site (Pittsburgh, United States) |
| Project ID | NIH-10667566 on NIH RePORTER |
What this research studies
This research focuses on enhancing participation in Alzheimer's disease research among adults with Down syndrome (DS), particularly addressing the barriers faced by diverse communities. It aims to create culturally and linguistically appropriate educational materials to raise awareness about the importance of research participation. The project will actively recruit individuals with DS into a cohort study while monitoring outreach strategies to ensure effective engagement. By collaborating with community stakeholders, the research seeks to improve understanding and treatment of Alzheimer's disease in this population.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults with Down syndrome, particularly those from diverse ethnoracial backgrounds.
Not a fit: Patients without Down syndrome or those who are not adults may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better understanding and treatment options for Alzheimer's disease in adults with Down syndrome.
How similar studies have performed: While there is ongoing research in related areas, this approach specifically targeting the Down syndrome population and their unique challenges is relatively novel.
Where this research is happening
Pittsburgh, United States
- University of Pittsburgh at Pittsburgh — Pittsburgh, United States (Active)
Researchers
- Principal investigator: Cohen, Ann D. — University of Pittsburgh at Pittsburgh
- Study coordinator: Cohen, Ann D.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.