Improving online Alzheimer's research registries to connect people with studies
Optimizing Research Infrastructure of Registries to Accelerate Participant Recruitment into Alzheimer's Focused Studies
This project builds better websites and tools to help older adults and their caregivers find and join Alzheimer's prevention and treatment research.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Banner Health NIH-funded |
| Lab location | 1 site (Phoenix, United States) |
| Project ID | NIH-11158720 on NIH RePORTER |
What this research studies
From your perspective, researchers are redesigning registry websites and online tools so they are easier to use, more engaging, and more automated. They plan to deploy these improved designs across existing Alzheimer’s registries and test which features increase sign-ups, diversity, and long-term participation. The team will link people to appropriate prevention and treatment opportunities and streamline follow-up to keep volunteers engaged. The goal is to make it simpler for both healthy older adults and people with Alzheimer’s (and their care partners) to learn about and join research.
Who could benefit from this research
Good fit: Ideal candidates are adults—especially older adults—interested in Alzheimer's prevention or treatment research, including people with AD and their care partners who can use online registries.
Not a fit: People without internet access, those with very advanced cognitive impairment who cannot use online tools, or those unwilling to participate in research are unlikely to benefit directly.
Why it matters
Potential benefit: If successful, this could make it much easier and faster for patients and caregivers to find, join, and stay in Alzheimer’s studies, increasing access to new treatments and prevention efforts.
How similar studies have performed: Other registry and online recruitment efforts have helped enroll people into Alzheimer’s studies, but this project aims to automate and scale those approaches to reach more and more diverse participants.
Where this research is happening
Phoenix, United States
- Banner Health — Phoenix, United States (Active)
Researchers
- Principal investigator: Langbaum, Jessica Brooke — Banner Health
- Study coordinator: Langbaum, Jessica Brooke
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.