Improving neurological health for resettled refugees through community partnerships
Beyond Barriers: Leveraging Community Expertise for Improved Neurological Health among U.S. Resettled Refugees
['FUNDING_OTHER'] · MASSACHUSETTS GENERAL HOSPITAL · NIH-11291806
This project brings resettled refugees together with researchers to co-create peer-support and community-led approaches for headaches and other neurological problems.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | MASSACHUSETTS GENERAL HOSPITAL (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-11291806 on ClinicalTrials.gov |
What this research studies
I would share my experiences using photos and stories and take part in community workshops where refugees, caregivers, and researchers work as equals. The team will use Photovoice sessions and Community Engagement Studios to collect lived experiences across pre-migration, migration, and resettlement phases. Together we will design culturally relevant peer-support interventions and plans for how those supports could be offered in local clinics and communities. The work focuses on making plans that fit refugees' real-life needs and barriers to care.
Who could benefit from this research
Good fit: Ideal participants are U.S.-resettled refugees who have headaches or other neurological symptoms, plus family members or community members willing to join photovoice sessions and engagement workshops.
Not a fit: People who are not resettled refugees or who do not have neurological concerns, or those unwilling to participate in community-based activities, are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, this work could create culturally relevant peer-support options and improve access to care for headaches and other neurological conditions among resettled refugees.
How similar studies have performed: Community-engaged approaches and photovoice have helped with chronic disease and mental health in other underserved groups, but applying these methods to refugee neurological care is relatively new.
Where this research is happening
BOSTON, UNITED STATES
- MASSACHUSETTS GENERAL HOSPITAL — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: SAADI, ALTAF — MASSACHUSETTS GENERAL HOSPITAL
- Study coordinator: SAADI, ALTAF
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Cephalgia Syndromes