Improving medication adherence in adolescents with lupus using personalized feedback

Direct-to-family pharmacokinetics intervention for hydroxychloroquine non-adherence in adolescents with systemic lupus erythematosus

NIH-funded research Duke University · NIH-10928505

This study is looking to help teenagers with lupus take their medicine regularly by creating a digital tool that shows them how their medication works in their body, making it easier for them to understand why it's important to stick to their treatment plan.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionDuke University NIH-funded
Lab location1 site (Durham, United States)
Project IDNIH-10928505 on NIH RePORTER

What this research studies

This research focuses on addressing the issue of medication non-adherence among adolescents with pediatric systemic lupus erythematosus (pSLE), particularly regarding the use of hydroxychloroquine (HCQ). The study aims to develop a digital intervention that provides personalized feedback based on pharmacokinetic simulations, helping patients understand their medication levels and encouraging them to take their medication as prescribed. By identifying a specific concentration cutoff for HCQ, the research seeks to create a reliable method for detecting non-adherence in clinical settings. The intervention will be tested for feasibility and preliminary effectiveness in a small group of adolescents, paving the way for larger trials in the future.

Who could benefit from this research

Good fit: Ideal candidates for this research are adolescents diagnosed with pediatric systemic lupus erythematosus who struggle with medication adherence.

Not a fit: Patients who are not adolescents or those without a diagnosis of pediatric systemic lupus erythematosus may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could significantly improve medication adherence and health outcomes for adolescents with lupus.

How similar studies have performed: Previous research has shown promise in using digital interventions to improve medication adherence, suggesting that this approach could be effective.

Where this research is happening

Durham, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.