Improving how we measure symptoms for nephrotic syndrome
Preparing a clinical outcomes assessment set for nephrotic syndrome [Prepare-NS]
This project aims to create better ways to measure how patients with nephrotic syndrome experience symptoms like fluid overload, making it easier to understand how new treatments are working.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Michigan at Ann Arbor NIH-funded |
| Lab location | 1 site (Ann Arbor, United States) |
| Project ID | NIH-11082524 on NIH RePORTER |
What this research studies
We are working to develop and test a core set of tools to measure important symptoms for people with nephrotic syndrome, especially focusing on fluid overload. This involves gathering insights from patients, doctors, regulators, and drug developers to make sure these tools truly reflect what matters most to patients. Our goal is to create reliable and patient-focused ways to track symptoms, which will help in the development of new medicines. Once developed, these new measurement tools will be made widely available for use in future clinical trials.
Who could benefit from this research
Good fit: Patients with nephrotic syndrome, particularly those experiencing fluid overload, may be ideal candidates for providing input on their experiences and symptoms.
Not a fit: Patients who do not have nephrotic syndrome or are not experiencing fluid overload would likely not directly benefit from this specific research.
Why it matters
Potential benefit: If successful, this work could lead to more accurate and patient-centered ways to measure treatment effectiveness for nephrotic syndrome, potentially speeding up the development of new therapies.
How similar studies have performed: While the development of clinical outcome assessments is an established field, this specific effort to create a core set for nephrotic syndrome with a focus on fluid overload is a novel and comprehensive approach.
Where this research is happening
Ann Arbor, United States
- University of Michigan at Ann Arbor — Ann Arbor, United States (Active)
Researchers
- Principal investigator: Salmon, Eloise — University of Michigan at Ann Arbor
- Study coordinator: Salmon, Eloise
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.