Improving hospital care for people with sickle cell disease
Formative Implementation Research on Translating Evidence to Hospital Care for People Living With Sickle Cell Disease (FIRES)
['FUNDING_OTHER'] · UNIVERSITY OF ROCHESTER · NIH-10939137
This study is all about making hospital visits better for people with sickle cell disease by creating personalized care plans to help manage pain quickly and effectively, so you can feel more comfortable and get the treatment you need without delays.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-10939137 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the hospital care experience for individuals living with sickle cell disease (SCD) by developing and implementing individualized care plans for acute pain episodes. The project aims to address barriers such as clinician knowledge gaps, stigma, and systemic complexities that often lead to delays in treatment. By engaging patients in the process, the research seeks to create protocols that improve pain management and overall care during hospital stays. The goal is to ensure that patients receive timely and effective treatment, ultimately reducing the risk of severe complications and death.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals aged 21 and older who are living with sickle cell disease and experience acute vaso-occlusive episodes.
Not a fit: Patients who do not have sickle cell disease or are not experiencing acute pain episodes may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better pain management and improved hospital experiences for patients with sickle cell disease.
How similar studies have performed: Previous research has shown that individualized care plans can improve patient experiences in emergency settings, indicating potential for success in inpatient care as well.
Where this research is happening
ROCHESTER, UNITED STATES
- UNIVERSITY OF ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: JENKINS, ASHLEY — UNIVERSITY OF ROCHESTER
- Study coordinator: JENKINS, ASHLEY
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.