Improving hospice care transitions for diverse patients with advanced dementia
Engage-D: DEsigNing Culturally Sensitive Care ManaGement for Hospice TrAnsitions for Diverse Persons LivinG with AdvancEd Dementia
This study is looking to make hospice care better for people with advanced Alzheimer's and similar conditions, especially for those from different racial and ethnic backgrounds, by finding out what stops them from getting the help they need and creating supportive solutions that fit their cultural needs.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | New York University NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-10886204 on NIH RePORTER |
What this research studies
This research focuses on enhancing hospice care transitions for individuals living with advanced Alzheimer's disease and related dementias, particularly among racially and ethnically diverse populations. It aims to identify and address the barriers that prevent these groups from accessing hospice services, such as cultural beliefs, mistrust, and lack of representation in research. By developing culturally sensitive care management interventions, the project seeks to improve the quality of end-of-life care and reduce hospitalizations for these patients. The approach involves collaboration with home healthcare professionals and caregivers to create effective strategies that can be integrated into existing care models.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals aged 21 and older living with advanced Alzheimer's disease or related dementias, particularly from racially and ethnically diverse backgrounds.
Not a fit: Patients who are not living with advanced dementia or those who do not belong to racially or ethnically diverse groups may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved access to hospice care and better end-of-life experiences for diverse patients with advanced dementia.
How similar studies have performed: Previous research has indicated that culturally tailored interventions can improve healthcare access and outcomes for underserved populations, suggesting potential success for this approach.
Where this research is happening
New York, United States
- New York University — New York, United States (Active)
Researchers
- Principal investigator: Murali, Komal Patel — New York University
- Study coordinator: Murali, Komal Patel
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.