Improving home care for children with serious illnesses
Official title: EXPERIENCE-Feedback Project
Funded at University of Pennsylvania · NIH-10984650 · Data updated 2026-11-12
This study is all about making sure that kids with serious illnesses and their families get the best support at home by improving how care teams communicate with them, so they can better understand and meet their needs.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pennsylvania NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | July 1, 2024 |
| Project end | June 30, 2027 |
| Funding year | 2024 |
| Award (this year) | $167,407 |
| NIH project number | 1K23NR021042-01A1 |
| Project ID | NIH-10984650 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children aged 0-11 years who are living with serious illnesses and their families, particularly those from historically marginalized communities.
✕Less likely to help
Patients who do not have serious illnesses or are outside the age range of 0-11 years may not receive any benefit from this research.
What this research studies
This research focuses on enhancing the support provided to children with serious illnesses and their families by improving communication between home-based pediatric palliative care (PPC) teams and families. It aims to collect and analyze data on families' experiences with home care, particularly addressing the challenges posed by social determinants of health. By rapidly feeding back this information to care teams, the project seeks to ensure that the care provided aligns more closely with the specific needs of families over time.
Why it matters
Potential benefit: If successful, this research could lead to more personalized and effective home care for children with serious illnesses, improving their overall well-being and quality of life.
How similar studies have gone: Previous research has shown that improving communication and feedback mechanisms in pediatric care can lead to better health outcomes, suggesting that this approach may be effective.
Where this research is happening
-
University of Pennsylvania
Philadelphia, United States Active
Researchers
- Principal investigator: Boyden, Jackelyn Y — University of Pennsylvania
- Study coordinator: Boyden, Jackelyn Y
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.