Improving home care for children on mechanical ventilation using remote monitoring
Official title: Equitable Implementation of Remote Patient Monitoring in Pediatric Invasive Home Mechanical Ventilation Using Wireless Devices
Funded at Lurie Children's Hospital of Chicago · NIH-11031762 · Data updated 2026-11-12
This study is all about helping kids who need special breathing machines at home by creating a system that lets parents easily share their child's health information with doctors, so they can provide better care, especially for Hispanic/Latinx families.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Lurie Children's Hospital of Chicago NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | February 15, 2025 |
| Project end | December 31, 2026 |
| Funding year | 2025 |
| Award (this year) | $117,750 |
| NIH project number | 1R03HL176736-01 |
| Project ID | NIH-11031762 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children aged 0-11 years who are dependent on invasive home mechanical ventilation due to conditions like bronchopulmonary dysplasia or neuromuscular disorders.
✕Less likely to help
Patients who do not require mechanical ventilation or are outside the age range of 0-11 years may not benefit from this research.
What this research studies
This research focuses on enhancing the care of children who require invasive home mechanical ventilation due to severe respiratory conditions. It aims to develop a remote patient monitoring system that allows parents to collect vital sign data and report symptoms, which will be integrated into the children's electronic health records. By analyzing this data, healthcare providers can make better-informed decisions about ventilator settings and care plans, ultimately improving patient outcomes and reducing caregiver burden. The study specifically addresses disparities in care for Hispanic/Latinx patients and seeks to create a more equitable approach to managing these complex cases.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and reduced caregiver stress for families managing complex respiratory needs at home.
How similar studies have gone: While remote monitoring in healthcare is gaining traction, this specific approach for pediatric invasive home mechanical ventilation is novel and has not been extensively tested.
Where this research is happening
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Lurie Children's Hospital of Chicago
Chicago, United States Active
Researchers
- Principal investigator: Foster, Carolyn C. — Lurie Children's Hospital of Chicago
- Study coordinator: Foster, Carolyn C.
Related research
Other NIH-funded projects on the same topics.
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Advancing Acute Respiratory Infection Care for Kids on Home Ventilators
This grant aims to improve how doctors and families manage acute respiratory infections in children who rely on invasive long-term home ventilation.
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A Tablet-Based Emotion Regulation Program for Surrogate Decision-Makers of ICU Patients on Ventilation
A randomized trial tests a brief tablet program to help people who decide for ICU patients on ventilation feel less anxious and make better decisions.
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Optimizing pain relief for children on mechanical ventilation
A large, multi-site trial tests whether adding non-opioid pain medicines to standard opioid care can reduce pain and lower opioid use in children on breathing machines in PICUs.
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Role of titin in diaphragm weakness during mechanical ventilation
This grant studies how the diaphragm’s core proteins work together, especially titin and myosin, to understand why diaphragm weakness happens during mechanical ventilation.
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Time-limited trials to guide invasive ventilation decisions
A scientific team is testing how short, structured trials of life-support in ICU patients with acute respiratory failure can help patients and families choose the best path.
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How breathing machines can harm the kidneys
Doctors will look at how ventilators change kidney filtering and salt handling in people who are critically ill to help prevent kidney damage.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.