Improving Healthcare Transitions for Young People with Intellectual or Developmental Disabilities
Healthcare Transitions and the Health of Adolescents and Young Adults with Intellectual or Developmental Disabilities
['FUNDING_R01'] · BOSTON CHILDREN'S HOSPITAL · NIH-11137087
This project looks at how young people with intellectual or developmental disabilities move from children's healthcare to adult healthcare systems to understand how this process affects their health.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BOSTON CHILDREN'S HOSPITAL (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-11137087 on ClinicalTrials.gov |
What this research studies
Many young people with intellectual or developmental disabilities (IDD) are living longer, healthier lives, but they often face challenges when switching from child-focused doctors to adult care. This project aims to understand this transition better by looking at a large amount of existing healthcare information from thousands of young people with IDD. We want to find out when these transitions typically happen, how the quality of care might change, and if insurance issues play a role. By using this data, we hope to identify ways to make these healthcare changes smoother and more effective for this group.
Who could benefit from this research
Good fit: This project focuses on understanding the healthcare experiences of adolescents and young adults, aged 10-28, who have intellectual or developmental disabilities.
Not a fit: Patients who are not adolescents or young adults with intellectual or developmental disabilities will not directly benefit from the findings of this specific data analysis.
Why it matters
Potential benefit: If successful, this work could help improve how healthcare systems support adolescents and young adults with intellectual or developmental disabilities as they transition to adult care, leading to better health outcomes.
How similar studies have performed: Our current understanding of how healthcare transitions proceed for large populations of adolescents and young adults with IDD is extremely limited, making this a novel approach to gather population-level insights.
Where this research is happening
BOSTON, UNITED STATES
- BOSTON CHILDREN'S HOSPITAL — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: CHIEN, ALYNA TUNG-MEI — BOSTON CHILDREN'S HOSPITAL
- Study coordinator: CHIEN, ALYNA TUNG-MEI
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.