Improving health outcomes for individuals with Down syndrome
Down Syndrome: Toward Optimal Trajectories and Health Equity using Medicaid Analytic eXtract (DS -TO-THE-MAX)
This study is looking at the health challenges faced by people with Down syndrome, like sleep apnea and dementia, to find ways to improve their health and quality of life, so they can live happier and healthier lives.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston University Medical Campus NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-11015948 on NIH RePORTER |
What this research studies
This research focuses on understanding the health trajectories of individuals with Down syndrome (DS) and aims to address health disparities they face. By analyzing Medicaid data, the project seeks to identify the prevalence of conditions such as obstructive sleep apnea and dementia, which significantly affect the quality of life and longevity of those with DS. The study will explore the social determinants of health that impact these individuals and develop strategies to improve their overall health outcomes. Patients may benefit from insights that lead to better management and treatment options for associated health issues.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals of all ages with Down syndrome, particularly those experiencing health issues like obstructive sleep apnea or dementia.
Not a fit: Patients without Down syndrome or those who do not have associated health conditions may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health management strategies and enhanced quality of life for individuals with Down syndrome.
How similar studies have performed: Previous research has shown success in addressing health disparities in similar populations, indicating that this approach could yield valuable insights.
Where this research is happening
Boston, United States
- Boston University Medical Campus — Boston, United States (Active)
Researchers
- Principal investigator: Rubenstein, Eric S — Boston University Medical Campus
- Study coordinator: Rubenstein, Eric S
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.