Improving health and well-being for individuals with Down syndrome
Down Syndrome Clinical Cohort Coordinating Center (DS-4C) for the INCLUDE Project
['FUNDING_OTHER'] · RESEARCH TRIANGLE INSTITUTE · NIH-11015427
This study is working to improve the health and well-being of people with Down syndrome by collecting important health information and samples from a wide range of participants, so that researchers can better understand and address their specific health needs.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | RESEARCH TRIANGLE INSTITUTE (nih funded) |
| Locations | 1 site (RESEARCH TRIANGLE PARK, UNITED STATES) |
| Trial ID | NIH-11015427 on ClinicalTrials.gov |
What this research studies
This research aims to enhance the health and quality of life for individuals with Down syndrome by coordinating a comprehensive data collection program. The INCLUDE Clinical Cohort Coordinating Center will oversee the development of standardized protocols for gathering health data and biospecimens from a diverse group of participants. By integrating efforts across multiple research sites, the project seeks to create a robust database that will support future studies on Down syndrome and its associated health challenges. Patients will benefit from a structured approach to data collection that aims to address their unique health needs.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals of all ages diagnosed with Down syndrome.
Not a fit: Patients without a diagnosis of Down syndrome or those who are not part of the targeted age range may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and targeted interventions for individuals with Down syndrome.
How similar studies have performed: Previous research initiatives focused on Down syndrome have shown promise in improving health outcomes through coordinated data collection and analysis.
Where this research is happening
RESEARCH TRIANGLE PARK, UNITED STATES
- RESEARCH TRIANGLE INSTITUTE — RESEARCH TRIANGLE PARK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: AUMAN, JEANETTE O'DONNELL — RESEARCH TRIANGLE INSTITUTE
- Study coordinator: AUMAN, JEANETTE O'DONNELL
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.