Improving health and well-being for individuals with Down syndrome
Down Syndrome Clinical Cohort Coordinating Center (DS-4C) for the INCLUDE Project
This study is working to improve the health and well-being of people with Down syndrome by gathering and sharing important information from different research projects, so that scientists can better understand and find new ways to help.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Research Triangle Institute NIH-funded |
| Lab location | 1 site (Research Triangle Park, United States) |
| Project ID | NIH-11015424 on NIH RePORTER |
What this research studies
This research aims to enhance the health and quality of life for individuals with Down syndrome by coordinating a comprehensive data collection program. It will establish a central hub to manage and integrate various research efforts focused on Down syndrome, ensuring that data is collected uniformly across multiple research sites. The project will facilitate the sharing of this data with researchers to support future studies aimed at addressing health issues associated with Down syndrome. By fostering collaboration among researchers, the initiative seeks to create a robust network that can lead to better understanding and treatment options for individuals with Down syndrome.
Who could benefit from this research
Good fit: Ideal candidates for participation are individuals with Down syndrome of all ages who are willing to contribute to research efforts.
Not a fit: Patients without a diagnosis of Down syndrome or those who are unable to participate in data collection may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and targeted interventions for individuals with Down syndrome.
How similar studies have performed: Previous research initiatives focusing on coordinated data collection for Down syndrome have shown promise in improving health outcomes, indicating that this approach is both relevant and potentially impactful.
Where this research is happening
Research Triangle Park, United States
- Research Triangle Institute — Research Triangle Park, United States (Active)
Researchers
- Principal investigator: Hunter, Jessica Ezzell — Research Triangle Institute
- Study coordinator: Hunter, Jessica Ezzell
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.