Improving health and well-being for individuals with Down syndrome
INCLUDE Down Syndrome Clinical Cohort Coordinating Center (DS-4C)
['FUNDING_OTHER'] · RESEARCH TRIANGLE INSTITUTE · NIH-11015423
This study is working to improve the health and well-being of people with Down syndrome by gathering important health information and samples from a wide range of individuals, so researchers can better understand and address related health issues together.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | RESEARCH TRIANGLE INSTITUTE (nih funded) |
| Locations | 1 site (RESEARCH TRIANGLE PARK, UNITED STATES) |
| Trial ID | NIH-11015423 on ClinicalTrials.gov |
What this research studies
This research aims to enhance the health and quality of life for individuals with Down syndrome by coordinating a comprehensive data collection program. It will establish a central hub to manage and integrate data from various research sites, ensuring that information is harmonized and accessible for future studies. The project will focus on collecting detailed health data and biological samples from a diverse group of individuals with Down syndrome across different age groups. By fostering collaboration among researchers, the initiative seeks to address co-morbidities associated with Down syndrome effectively.
Who could benefit from this research
Good fit: Ideal candidates for participation include individuals with Down syndrome of all ages, from infants to adults.
Not a fit: Patients without Down syndrome or those who do not meet the age criteria may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and targeted interventions for individuals with Down syndrome.
How similar studies have performed: Previous research initiatives focused on Down syndrome have shown promise in improving health outcomes through coordinated data collection and analysis.
Where this research is happening
RESEARCH TRIANGLE PARK, UNITED STATES
- RESEARCH TRIANGLE INSTITUTE — RESEARCH TRIANGLE PARK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HUNTER, JESSICA EZZELL — RESEARCH TRIANGLE INSTITUTE
- Study coordinator: HUNTER, JESSICA EZZELL
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.