Improving gene therapy for a specific type of ALS

Optimization of an in vivo base editing strategy to treat SOD1-linked ALS

NIH-funded research University of Illinois at Urbana-Champaign · NIH-10991834

This study is testing a new gene therapy for people with ALS caused by a specific gene mutation, using a safe method to change the DNA and stop the harmful protein from being made, with the hope of making the treatment more effective and safer for patients.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniversity of Illinois at Urbana-Champaign NIH-funded
Lab location1 site (Champaign, United States)
Project IDNIH-10991834 on NIH RePORTER

What this research studies

This research focuses on enhancing a gene therapy designed to treat amyotrophic lateral sclerosis (ALS) caused by mutations in the SOD1 gene. The approach utilizes CRISPR base editing to precisely modify DNA without causing harmful breaks, aiming to permanently stop the production of the mutant SOD1 protein. By delivering this therapy via adeno-associated virus directly to the spinal cord, the researchers hope to improve safety and effectiveness compared to existing treatments. The study builds on promising results from animal models that showed extended survival and slowed disease progression.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals diagnosed with familial ALS linked to SOD1 mutations.

Not a fit: Patients with sporadic ALS or those with mutations not related to SOD1 may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could provide a long-lasting treatment option for patients with SOD1-linked ALS, potentially improving their quality of life and extending survival.

How similar studies have performed: Previous research using CRISPR-based gene editing has shown promise in animal models, indicating potential for success in this novel approach.

Where this research is happening

Champaign, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.