Improving End-of-Life Care for Children and Their Families
Official title: Effectiveness of Concurrent Care to Improve Pediatric and Family Outcomes at End of Life
Funded at University of Tennessee Knoxville · NIH-11145928 · Data updated 2026-11-12
This project looks at how well a special type of care, called concurrent care, helps children with serious illnesses and their families during a difficult time.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Tennessee Knoxville NIH-funded |
| Lab location | 1 site (Knoxville, United States) |
| Project start | July 29, 2024 |
| Project end | May 31, 2028 |
| Funding year | 2025 |
| Award (this year) | $405,372 |
| NIH project number | 5R01NR017848-06 |
| Project ID | NIH-11145928 on NIH RePORTER |
Who could benefit from this research
✓Could help
This research focuses on children and adolescents (0-11 years old and older) with serious illnesses who are receiving concurrent care, particularly those in rural areas.
✕Less likely to help
Patients not receiving concurrent care or those outside the pediatric age range may not directly benefit from this specific policy evaluation.
What this research studies
This project builds on previous work to understand how a specific health policy, called transitional care regulations (TCR), helps children and teenagers with serious illnesses. We are particularly interested in how these regulations affect children in rural areas, who often face challenges with coordinated care. The goal is to see if these policies improve children's health and how healthcare resources are used at the end of life. We also plan to use advanced computer methods to find out which rural children might be most at risk and could benefit most from these care improvements.
Why it matters
Potential benefit: If successful, this work could lead to better coordinated and more effective end-of-life care for children and adolescents, especially those living in rural communities.
How similar studies have gone: This is a renewal of a productive research program, with previous work identifying challenges in pediatric concurrent care that led to the policy changes now being examined.
Where this research is happening
-
University of Tennessee Knoxville
Knoxville, United States Active
Researchers
- Principal investigator: Lindley, Lisa C. — University of Tennessee Knoxville
- Study coordinator: Lindley, Lisa C.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.