Improving early diagnosis and care access for sickle cell disease in children
The Nurse Champion Model for Sickle Cell Disease Early Diagnosis and Care Access
['FUNDING_R21'] · UNIVERSITY OF SOUTH FLORIDA · NIH-10640838
This study is working to help kids in Sierra Leone get diagnosed and treated for sickle cell disease earlier, using easy and affordable tests in local health centers, so they can live healthier lives.
Quick facts
| Phase | ['FUNDING_R21'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF SOUTH FLORIDA (nih funded) |
| Locations | 1 site (TAMPA, UNITED STATES) |
| Trial ID | NIH-10640838 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the early diagnosis and care access for children with sickle cell disease (SCD) in Sub-Saharan Africa, where many children die before age five due to undiagnosed SCD. The project will implement a novel point-of-care testing model in urban and rural primary health centers in Sierra Leone, aiming to facilitate timely diagnosis and treatment. By utilizing inexpensive and effective testing methods, the research seeks to improve health outcomes for affected children. The study will also evaluate the implementation processes and the effectiveness of this model in reducing morbidity and mortality rates.
Who could benefit from this research
Good fit: Ideal candidates for this research are newborns and young children diagnosed with sickle cell disease in Sub-Saharan Africa.
Not a fit: Patients outside of Sub-Saharan Africa or those without sickle cell disease may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly increase the survival rates of children with sickle cell disease in Sub-Saharan Africa.
How similar studies have performed: Previous research has shown that early diagnosis and treatment of sickle cell disease can dramatically improve survival rates, indicating a promising approach.
Where this research is happening
TAMPA, UNITED STATES
- UNIVERSITY OF SOUTH FLORIDA — TAMPA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: JAJA, CHEEDY — UNIVERSITY OF SOUTH FLORIDA
- Study coordinator: JAJA, CHEEDY
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Hb SS disease, HbSS disease, Hemoglobin S Disease, Hemoglobin sickle cell disease, Hemoglobin sickle cell disorder