Improving decision-making skills in youth with sickle cell disease during their transition to adult care
Longitudinal study of cognitive remediation to prepare for transition of care in youth with sickle cell disease
This study is all about helping young people with sickle cell disease make better decisions about their health as they move from children's to adult care, using fun online activities to boost their self-care skills and confidence.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project ID | NIH-11041103 on NIH RePORTER |
What this research studies
This research focuses on helping young patients with sickle cell disease (SCD) improve their decision-making skills as they transition from pediatric to adult medical care. It utilizes a cognitive remediation program delivered through telehealth, aiming to enhance self-care and self-advocacy among these patients. The program is designed to address cognitive impairments that can hinder effective decision-making, especially during this critical transition period. By participating, patients will engage in activities that promote better health management and independence as they move into adulthood.
Who could benefit from this research
Good fit: Ideal candidates for this research are youth aged 0-21 years diagnosed with sickle cell disease who are preparing to transition to adult healthcare.
Not a fit: Patients who are not diagnosed with sickle cell disease or those who are not in the transition age group may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve the health outcomes and quality of life for youth with sickle cell disease by equipping them with essential decision-making skills.
How similar studies have performed: Previous research has shown promise in using cognitive remediation techniques for improving decision-making in various populations, suggesting potential success for this approach in youth with sickle cell disease.
Where this research is happening
Birmingham, United States
- University of Alabama at Birmingham — Birmingham, United States (Active)
Researchers
- Principal investigator: Murdaugh, Donna — University of Alabama at Birmingham
- Study coordinator: Murdaugh, Donna
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.