Improving decision-making in pediatric rheumatology care for children with Juvenile Idiopathic Arthritis.
Official title: Inform Shared Decision-making with Advanced Bayesian Causal Inference to Improve Quality of Pediatric Rheumatology Care
Funded at Seattle Children's Hospital · NIH-11257404 · Data updated 2026-11-12
This study is working on a new digital tool to help doctors make better treatment choices for kids with Juvenile Idiopathic Arthritis by using real-life experiences from patients and healthcare providers, so that each child gets care that fits their needs and preferences.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | April 1, 2023 |
| Project end | March 31, 2028 |
| Funding year | 2025 |
| Award (this year) | $259,672 |
| NIH project number | 4R33HS029399-03 |
| Project ID | NIH-11257404 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children diagnosed with Juvenile Idiopathic Arthritis, particularly those with the polyarticular form of the disease.
✕Less likely to help
Patients with other forms of arthritis or those without a diagnosis of Juvenile Idiopathic Arthritis may not benefit from this research.
What this research studies
This research focuses on enhancing the treatment of children with Juvenile Idiopathic Arthritis (JIA) by developing a digital health technology that utilizes real-world data to inform treatment decisions. The approach involves creating a shared clinical data registry that collects and synthesizes experiences from healthcare providers and patients, allowing for personalized treatment strategies. By integrating patient values and preferences into the decision-making process, the goal is to improve outcomes for children suffering from this complex condition.
Why it matters
Potential benefit: If successful, this research could lead to more effective and personalized treatment options for children with Juvenile Idiopathic Arthritis.
How similar studies have gone: While the approach of using digital health technology for shared decision-making is innovative, similar methodologies have shown promise in other areas of pediatric care.
Where this research is happening
-
Seattle Children's Hospital
Seattle, United States Active
Researchers
- Principal investigator: Morgan, Esi M — Seattle Children's Hospital
- Study coordinator: Morgan, Esi M
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.