Improving decision-making in pediatric rheumatology care for children with Juvenile Idiopathic Arthritis.
Inform Shared Decision-making with Advanced Bayesian Causal Inference to Improve Quality of Pediatric Rheumatology Care
This study is working on a new digital tool to help doctors make better treatment choices for kids with Juvenile Idiopathic Arthritis by using real-life experiences from patients and healthcare providers, so that each child gets care that fits their needs and preferences.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-11257404 on NIH RePORTER |
What this research studies
This research focuses on enhancing the treatment of children with Juvenile Idiopathic Arthritis (JIA) by developing a digital health technology that utilizes real-world data to inform treatment decisions. The approach involves creating a shared clinical data registry that collects and synthesizes experiences from healthcare providers and patients, allowing for personalized treatment strategies. By integrating patient values and preferences into the decision-making process, the goal is to improve outcomes for children suffering from this complex condition.
Who could benefit from this research
Good fit: Ideal candidates for this research are children diagnosed with Juvenile Idiopathic Arthritis, particularly those with the polyarticular form of the disease.
Not a fit: Patients with other forms of arthritis or those without a diagnosis of Juvenile Idiopathic Arthritis may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective and personalized treatment options for children with Juvenile Idiopathic Arthritis.
How similar studies have performed: While the approach of using digital health technology for shared decision-making is innovative, similar methodologies have shown promise in other areas of pediatric care.
Where this research is happening
Seattle, United States
- Seattle Children's Hospital — Seattle, United States (Active)
Researchers
- Principal investigator: Morgan, Esi M — Seattle Children's Hospital
- Study coordinator: Morgan, Esi M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.