Improving CRISPR technology to treat a genetic cause of frontotemporal dementia

Optimization of CRISPR genome editor and its delivery strategy for C9orf72 frontotemporal dementia

['FUNDING_U01'] · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · NIH-10746565

This study is exploring a new way to use CRISPR technology to fix a gene linked to frontotemporal dementia and ALS, aiming to help patients by delivering treatment directly to the brain.

Quick facts

Phase['FUNDING_U01']
Study typeNih_funding
SexAll
SponsorUNIVERSITY OF CALIFORNIA, SAN FRANCISCO (nih funded)
Locations1 site (SAN FRANCISCO, UNITED STATES)
Trial IDNIH-10746565 on ClinicalTrials.gov

What this research studies

This research focuses on developing a CRISPR genome editing approach to target the C9orf72 gene, which is linked to frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS). The team has created a dual sgRNA strategy that can effectively remove the harmful repeat expansion in the gene while preserving its essential functions. Additionally, they have engineered a silica nanocapsule platform that can deliver these genome editors across the blood-brain barrier, potentially allowing for treatment directly in the brain. This innovative method aims to provide a new therapeutic option for patients suffering from these neurodegenerative diseases.

Who could benefit from this research

Good fit: Ideal candidates for this research are adults diagnosed with frontotemporal dementia or those who carry the genetic mutation in the C9orf72 gene.

Not a fit: Patients with frontotemporal dementia not linked to the C9orf72 gene mutation may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to a groundbreaking treatment for frontotemporal dementia, offering hope to patients with this currently untreatable condition.

How similar studies have performed: This approach is novel, but similar gene-editing strategies have shown promise in other genetic disorders, indicating potential for success.

Where this research is happening

SAN FRANCISCO, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: Alzheimer disease dementia, Alzheimer syndrome

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.