Improving communication for parents of children with severe neurological impairment in the ICU
A Novel Photo-Narrative Communication Intervention Among Parents of Children with Severe Neurological Impairment in the ICU
This study is creating a helpful tool for parents of kids with serious brain injuries to better share their thoughts and feelings with doctors in the ICU, making it easier for them to communicate during tough times.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-11096033 on NIH RePORTER |
What this research studies
This research aims to develop a communication intervention that helps parents of children with severe neurological impairment (SNI) effectively share their perspectives, needs, and values with healthcare providers in the ICU. The project will first assess how parents perceive their relationship with clinicians and the impact of this on their stress levels during their child's ICU stay. Following this, a novel photo-elicitation communication tool will be refined based on feedback from both parents and clinicians. Finally, the intervention will be pilot tested to evaluate its effectiveness in enhancing communication and support for families during critical times.
Who could benefit from this research
Good fit: Ideal candidates for this research are parents of children aged 0-11 years who are admitted to the ICU with severe neurological impairments.
Not a fit: Patients who do not have severe neurological impairments or are not admitted to the ICU may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly reduce parental stress and improve the quality of care for children with severe neurological impairments in the ICU.
How similar studies have performed: Similar approaches in enhancing communication in critical care settings have shown promise, indicating potential for success in this novel intervention.
Where this research is happening
Seattle, United States
- Seattle Children's Hospital — Seattle, United States (Active)
Researchers
- Principal investigator: Bogetz, Jori — Seattle Children's Hospital
- Study coordinator: Bogetz, Jori
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.