Improving communication for ALS patients using brain-controlled interfaces
Metrics for Brain Controlled Communication: A comprehensive review of clinical outcome assessments for communication brain computer interfaces in amyotrophic lateral sclerosis
['FUNDING_OTHER'] · BLACKROCK MICROSYSTEMS · NIH-10931572
This study is looking at how special brain-computer interfaces can help people with ALS communicate better, so they can share their thoughts and feelings more easily and improve their quality of life.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BLACKROCK MICROSYSTEMS (nih funded) |
| Locations | 1 site (SALT LAKE CITY, UNITED STATES) |
| Trial ID | NIH-10931572 on ClinicalTrials.gov |
What this research studies
This research focuses on developing and validating communication brain-computer interfaces (cBCIs) for individuals with amyotrophic lateral sclerosis (ALS), a condition that severely limits motor function and communication abilities. By creating a comprehensive knowledge base on how cBCIs can enhance communication for ALS patients, the project aims to establish standardized clinical outcome assessments that reflect the needs and experiences of patients, caregivers, and healthcare providers. The methodology includes evaluating patient perceptions and the effectiveness of cBCIs in facilitating communication, ultimately aiming to improve quality of life for those affected by ALS.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with amyotrophic lateral sclerosis who experience severe communication limitations due to their condition.
Not a fit: Patients with early-stage ALS or those without significant communication impairments may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could significantly enhance communication abilities for ALS patients, improving their quality of life and reducing caregiver burden.
How similar studies have performed: Previous research with brain-computer interface technologies has shown promising results in restoring communication for locked-in ALS patients, indicating potential for success in this approach.
Where this research is happening
SALT LAKE CITY, UNITED STATES
- BLACKROCK MICROSYSTEMS — SALT LAKE CITY, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: KELLIS, SPENCER — BLACKROCK MICROSYSTEMS
- Study coordinator: KELLIS, SPENCER
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.