Improving communication between patients with sickle cell disease and their healthcare providers
Adaptation and Pilot Testing of a Patient-provider Communication Intervention for Adults with Sickle Cell Disease
['FUNDING_CAREER'] · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · NIH-10886277
This study is all about helping adults with sickle cell disease talk more easily with their doctors so they can share their needs and concerns better, using a special method called SBAR3 to improve their care and health.
Quick facts
| Phase | ['FUNDING_CAREER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF PITTSBURGH AT PITTSBURGH (nih funded) |
| Locations | 1 site (PITTSBURGH, UNITED STATES) |
| Trial ID | NIH-10886277 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the communication skills of adults with sickle cell disease (SCD) to improve their interactions with healthcare providers. It aims to develop and pilot test a communication intervention called SBAR3, which helps patients articulate their needs and concerns effectively. By using this structured approach, patients can better engage in their care, leading to improved treatment adherence and health outcomes. The study will gather insights on the specific communication challenges faced by this population and tailor the intervention accordingly.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults aged 21 and older who are living with sickle cell disease.
Not a fit: Patients who are not affected by sickle cell disease or are under the age of 21 may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could empower patients with sickle cell disease to communicate more effectively with their healthcare providers, leading to better health management.
How similar studies have performed: Previous research has shown that communication interventions like SBAR3 have been successful in improving patient outcomes in other chronic disease populations.
Where this research is happening
PITTSBURGH, UNITED STATES
- UNIVERSITY OF PITTSBURGH AT PITTSBURGH — PITTSBURGH, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: O'BRIEN, JULIA A — UNIVERSITY OF PITTSBURGH AT PITTSBURGH
- Study coordinator: O'BRIEN, JULIA A
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Blood Diseases