Improving cognitive skills in children and adolescents with sickle cell disease
A Pilot Study of an Enhanced Program to Promote Adherence to eHealth Cognitive Rehabilitation in Sickle Cell Disease
This study is testing a new program to help kids and teens with sickle cell disease improve their memory and thinking skills through fun online training, while also getting support from family and friends to make it easier and more enjoyable.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Research Institute NIH-funded |
| Lab location | 1 site (Washington, United States) |
| Project ID | NIH-11042880 on NIH RePORTER |
What this research studies
This research aims to enhance cognitive rehabilitation for children and adolescents suffering from sickle cell disease (SCD) by evaluating a new program that promotes adherence to an eHealth working memory training called Cogmed. The program includes social support elements such as family kickoff events and peer navigator assistance to encourage participation and improve cognitive function. By focusing on working memory, which is often impaired in SCD patients, the study seeks to determine if these enhancements can lead to better engagement and outcomes. Participants will engage in home-based training designed to address cognitive deficits associated with their condition.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and adolescents diagnosed with sickle cell disease who may experience cognitive deficits.
Not a fit: Patients without a diagnosis of sickle cell disease or those who do not exhibit cognitive deficits may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve cognitive abilities and quality of life for children and adolescents with sickle cell disease.
How similar studies have performed: Previous studies have shown promise in using eHealth interventions for cognitive rehabilitation, suggesting potential for success in this novel approach.
Where this research is happening
Washington, United States
- Children's Research Institute — Washington, United States (Active)
Researchers
- Principal investigator: Hardy, Steven James — Children's Research Institute
- Study coordinator: Hardy, Steven James
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.