Improving clinical trials for a kidney disease called ADPKD
Biomedical Research Core 3 - Clinical Research Core
This study is working to improve new treatments for Autosomal Dominant Polycystic Kidney Disease (ADPKD) by bringing together researchers and young patients to share information and find important clues about the disease, while also making sure that patients and their families have a say in what research is most important to them.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Kansas Medical Center NIH-funded |
| Lab location | 1 site (Kansas City, United States) |
| Project ID | NIH-10884901 on NIH RePORTER |
What this research studies
This research focuses on enhancing the development of new treatments for Autosomal Dominant Polycystic Kidney Disease (ADPKD) by addressing key challenges in clinical trials. It aims to create a network of academic centers to facilitate collaboration and data sharing among researchers. The project will also follow a group of young patients with early ADPKD to collect biological samples for identifying potential biomarkers. Additionally, it seeks to engage patients and their families in shaping research priorities, ensuring that the studies align with their needs.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with early-stage Autosomal Dominant Polycystic Kidney Disease.
Not a fit: Patients with advanced stages of kidney disease or those not diagnosed with ADPKD may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective treatments for patients with ADPKD, improving their quality of life and health outcomes.
How similar studies have performed: Previous research has shown promise in similar collaborative approaches to enhance clinical trial efficiency and patient engagement in other diseases.
Where this research is happening
Kansas City, United States
- University of Kansas Medical Center — Kansas City, United States (Active)
Researchers
- Principal investigator: Yu, Alan S — University of Kansas Medical Center
- Study coordinator: Yu, Alan S
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.