Improving clinical trial design for neurodegenerative diseases

Developing a Robust and Efficient Strategy for Censored Covariates to Improve Clinical Trial Design for Neurodegenerative Diseases

NIH-funded research Univ of North Carolina Chapel Hill · NIH-11083607

This study is looking at how symptoms of neurodegenerative diseases, like Huntington's disease, change over time to find the best moments for starting new treatments, which could lead to better clinical trials for those affected.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniv of North Carolina Chapel Hill NIH-funded
Lab location1 site (Chapel Hill, United States)
Project IDNIH-11083607 on NIH RePORTER

What this research studies

This research focuses on developing better statistical models to understand how symptoms of neurodegenerative diseases, like Huntington's disease, progress over time. By accurately modeling the trajectory of symptoms before and after a clinical diagnosis, the research aims to identify the optimal timing for therapeutic interventions. This could help in designing clinical trials that are more effective in testing new treatments. The approach involves addressing the challenges posed by incomplete data due to the slow progression of these diseases.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals diagnosed with neurodegenerative diseases, particularly those at risk for Huntington's disease.

Not a fit: Patients with acute neurodegenerative conditions or those who do not have a genetic predisposition to Huntington's disease may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to more effective clinical trials and ultimately better treatment options for patients with neurodegenerative diseases.

How similar studies have performed: While the approach of modeling symptom trajectories is established, this specific application to right-censored covariates in neurodegenerative diseases is relatively novel and has not been extensively tested.

Where this research is happening

Chapel Hill, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions degenerative diseases of motor and sensory neuronsDegenerative Neurologic Disordersdegenerative neurological diseasesDisease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.