Improving care quality for lupus patients using electronic health records
Advancing Quality and Outcomes Measurement in Rheumatology
['FUNDING_OTHER'] · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · NIH-11003327
This study is working to improve care for people with lupus by using health data from doctors across the country to create better ways to measure and understand their health, so that healthcare providers can give you the best support possible.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF CALIFORNIA, SAN FRANCISCO (nih funded) |
| Locations | 1 site (SAN FRANCISCO, UNITED STATES) |
| Trial ID | NIH-11003327 on ClinicalTrials.gov |
What this research studies
This research aims to enhance the quality of care for individuals with lupus by utilizing data from the American College of Rheumatology’s RISE registry, which collects electronic health records from nearly 1000 rheumatologists across the country. The project will validate new quality measures specifically for lupus and develop a toolkit to help healthcare providers effectively use patient-reported outcome measures in their practices. By focusing on these areas, the research seeks to address significant health disparities faced by lupus patients and improve their overall care experience.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with lupus who are receiving care from rheumatologists participating in the RISE registry.
Not a fit: Patients with conditions other than lupus or those not receiving care from participating rheumatologists may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare quality and outcomes for lupus patients nationwide.
How similar studies have performed: Previous research has shown success in improving care quality through the use of electronic health records and clinical data registries, indicating that this approach is promising.
Where this research is happening
SAN FRANCISCO, UNITED STATES
- UNIVERSITY OF CALIFORNIA, SAN FRANCISCO — SAN FRANCISCO, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: YAZDANY, JINOOS — UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
- Study coordinator: YAZDANY, JINOOS
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Centers for Disease Control, Centers for Disease Control and Prevention, Centers for Disease Control and Prevention (U.S.)