Improving care for young adults with congenital heart disease and addressing health equity in pediatric care
Official title: Transforming Care Delivery Models for at-Risk Young Adult Patients with Congenital Heart Disease and Amplifying Research Efforts to Improve Health Equity in Pediatric Chronic Disease Care
Funded at Baylor College of Medicine · NIH-11120941 · Data updated 2026-11-12
This study is looking to improve healthcare for young adults with congenital heart disease as they move from children's to adult care, especially for those from diverse backgrounds or lower-income families, by training new researchers to help make healthcare fairer for everyone.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Baylor College of Medicine NIH-funded |
| Lab location | 1 site (Houston, United States) |
| Project start | June 18, 2024 |
| Project end | January 31, 2026 |
| Funding year | 2025 |
| Award (this year) | $614,377 |
| NIH project number | 5R01MD019298-02 |
| Project ID | NIH-11120941 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include young adults with congenital heart disease, particularly those facing barriers to accessing appropriate healthcare.
✕Less likely to help
Patients without congenital heart disease or those who are not transitioning from pediatric to adult care may not benefit from this research.
What this research studies
This research focuses on enhancing care delivery models for young adults who have congenital heart disease (CHD) as they transition from pediatric to adult healthcare systems. It aims to address significant disparities in access to care, particularly for racial and ethnic minorities and those from lower socioeconomic backgrounds. The project will train new pediatric health equity researchers to improve health outcomes for these at-risk populations. By leveraging existing expertise and infrastructure, the research seeks to create a more equitable healthcare environment for individuals with chronic conditions.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare access and outcomes for young adults with congenital heart disease.
How similar studies have gone: Previous research has shown success in improving care transitions for pediatric patients, indicating that this approach has potential for positive outcomes.
Where this research is happening
-
Baylor College of Medicine
Houston, United States Active
Researchers
- Principal investigator: Lopez, Keila Natilde — Baylor College of Medicine
- Study coordinator: Lopez, Keila Natilde
Related research
Other NIH-funded projects on the same topics.
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Multimodal AI to improve genetic diagnosis of congenital heart disease
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-
Multimodal AI to improve genetic diagnosis of congenital heart disease
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-
Brain injury risk in preterm babies with heart disease and how surgery choices affect their brains
This project follows newborns with congenital heart disease born early to understand how their brains are affected and how different surgical approaches might influence outcomes.
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Newborn brain injury risk during birth transition in babies with congenital heart defects
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-
Heart development study using patient stem cells to understand NOTCH1 and congenital heart disease
A study using patient-derived stem cells and genome editing to learn how NOTCH1 affects early heart development and congenital heart defects in humans.
-
AI-powered echocardiography to spot common heart defects in newborns
A new AI tool analyzes infant heart ultrasound images to help non-specialist health workers identify five common, treatable heart defects early.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.