Improving care for people living with spina bifida.
Participation of Gillette Children's Specialty Healthcare in the NSBPR
This study is all about improving care for people with spina bifida by bringing together different medical specialists at Gillette Children's Specialty Healthcare, so patients can get all the help they need in one convenient place.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Gillette Children's Specialty Healthcare NIH-funded |
| Lab location | 1 site (St. Paul, United States) |
| Project ID | NIH-11141533 on NIH RePORTER |
What this research studies
This research focuses on enhancing the care and outcomes for individuals with spina bifida through the established programs at Gillette Children's Specialty Healthcare. The approach involves a comprehensive care model that integrates various specialties, including physical medicine, orthopaedics, urology, and neurosurgery, to address both acute and chronic needs. Patients will benefit from a coordinated care system that includes access to a hospital and multiple specialty clinics, ensuring that all necessary services are available in one place.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals of all ages diagnosed with spina bifida who require specialized medical care.
Not a fit: Patients without a diagnosis of spina bifida or those who do not require specialized care for this condition may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals living with spina bifida.
How similar studies have performed: Previous research has shown success in improving care models for chronic conditions, indicating that this approach has the potential for positive outcomes.
Where this research is happening
St. Paul, United States
- Gillette Children's Specialty Healthcare — St. Paul, United States (Active)
Researchers
- Principal investigator: Cady, Rhonda G — Gillette Children's Specialty Healthcare
- Study coordinator: Cady, Rhonda G
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.