Improving care for people living with spina bifida.
Official title: Participation of Gillette Children's Specialty Healthcare in the NSBPR
Funded at Gillette Children's Specialty Healthcare · NIH-11141533 · Data updated 2026-11-12
This study is all about improving care for people with spina bifida by bringing together different medical specialists at Gillette Children's Specialty Healthcare, so patients can get all the help they need in one convenient place.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Gillette Children's Specialty Healthcare NIH-funded |
| Lab location | 1 site (St. Paul, United States) |
| Project start | September 1, 2019 |
| Project end | August 31, 2025 |
| Funding year | 2023 |
| Award (this year) | $80,000 |
| NIH project number | 6U01DD001268-05M001 |
| Project ID | NIH-11141533 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals of all ages diagnosed with spina bifida who require specialized medical care.
✕Less likely to help
Patients without a diagnosis of spina bifida or those who do not require specialized care for this condition may not benefit from this research.
What this research studies
This research focuses on enhancing the care and outcomes for individuals with spina bifida through the established programs at Gillette Children's Specialty Healthcare. The approach involves a comprehensive care model that integrates various specialties, including physical medicine, orthopaedics, urology, and neurosurgery, to address both acute and chronic needs. Patients will benefit from a coordinated care system that includes access to a hospital and multiple specialty clinics, ensuring that all necessary services are available in one place.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals living with spina bifida.
How similar studies have gone: Previous research has shown success in improving care models for chronic conditions, indicating that this approach has the potential for positive outcomes.
Where this research is happening
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Gillette Children's Specialty Healthcare
St. Paul, United States Active
Researchers
- Principal investigator: Cady, Rhonda G — Gillette Children's Specialty Healthcare
- Study coordinator: Cady, Rhonda G
Related research
Other NIH-funded projects on the same topics.
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Care and outcomes for people living with spina bifida at Gillette Children’s Specialty Healthcare
A program funded by NIH to improve care and outcomes for people living with spina bifida through Gillette Children’s Specialty Healthcare.
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Gillette Children's participation in the National Spina Bifida Patient Registry
This project collects health and care information from children and adults with spina bifida seen at Gillette to help improve future care and outcomes.
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Understanding and reducing chronic pain after surgery in children with cerebral palsy
This study is looking at how kids with cerebral palsy feel pain before and after their surgeries, hoping to find ways to reduce long-lasting pain after the operation and make their recovery easier.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.