Improving care for people living with dementia through data access and ethics.
Official title: Administrative Data Transfer Masking, Access, and Ethics Core
Funded at University of Michigan at Ann Arbor · NIH-10932952 · Data updated 2026-11-12
This study is working to improve care for people with dementia by combining important survey and health data to better understand their needs, which will help doctors and policymakers create better resources for patients and their families.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Michigan at Ann Arbor NIH-funded |
| Lab location | 1 site (Ann Arbor, United States) |
| Project start | September 30, 2023 |
| Project end | August 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $902,135 |
| NIH project number | 5U54AG084520-02 |
| Project ID | NIH-10932952 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals diagnosed with Alzheimer's disease or related dementias, as well as their caregivers.
✕Less likely to help
Patients with conditions unrelated to dementia or those not receiving care in settings that participate in the study may not benefit from this research.
What this research studies
This research focuses on enhancing the care provided to individuals living with dementia by developing a robust data infrastructure. It aims to link survey data from the National Dementia Workforce Study with administrative data from Medicare and Medicaid to analyze care delivery and workforce needs. By ensuring privacy through data masking and ethical guidelines, the project seeks to provide valuable insights that can inform policymakers and healthcare providers. Patients and their families can benefit from improved understanding and resources for dementia care.
Why it matters
Potential benefit: If successful, this research could lead to better care strategies and workforce planning for individuals living with dementia.
How similar studies have gone: Previous research has shown success in using linked administrative data to improve healthcare delivery, indicating a promising approach for this study.
Where this research is happening
-
University of Michigan at Ann Arbor
Ann Arbor, United States Active
Researchers
- Principal investigator: Marcus, Steven C — University of Michigan at Ann Arbor
- Study coordinator: Marcus, Steven C
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.