Improving care for patients with hereditary cancer syndromes
Official title: Randomized Trial to Improve Care of Patients with Hereditary Cancer Syndromes
Funded at Healthpartners Institute · NIH-11052525 · Data updated 2026-11-12
This study is looking to make sure that people with hereditary cancer syndromes, like those linked to breast, ovarian, or Lynch syndrome, get the best follow-up care by helping their primary care doctors connect them with the right specialists and preventive screenings they need.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Healthpartners Institute NIH-funded |
| Lab location | 1 site (Bloomington, UNITED STATES) |
| Project start | April 1, 2024 |
| Project end | March 31, 2029 |
| Funding year | 2025 |
| Award (this year) | $656,446 |
| NIH project number | 5R01CA283332-02 |
| Project ID | NIH-11052525 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals aged 21 and older who have been identified as having hereditary cancer syndromes, such as those with BRCA1 or BRCA2 gene mutations.
✕Less likely to help
Patients who do not have hereditary cancer syndromes or those who are already receiving comprehensive care from specialized oncology teams may not benefit from this research.
What this research studies
This research aims to enhance the care of individuals diagnosed with hereditary cancer syndromes, such as Hereditary Breast and Ovarian Cancer Syndrome and Lynch Syndrome. It focuses on improving follow-up care by utilizing primary care visits to ensure timely referrals to specialists and adherence to cancer prevention guidelines. The study will assess how effectively primary care clinicians can support patients in accessing necessary preventive measures and screenings. By integrating evidence-based clinical decision support into primary care, the research seeks to improve patient outcomes and ensure that high-risk individuals receive appropriate care.
Why it matters
Potential benefit: If successful, this research could lead to better early detection and prevention of cancers associated with hereditary syndromes, ultimately improving survival rates and quality of life for patients.
How similar studies have gone: Previous research has shown that integrating primary care with specialized cancer prevention strategies can improve patient outcomes, indicating a promising approach in this area.
Where this research is happening
-
Healthpartners Institute
Bloomington, United States Active
Researchers
- Principal investigator: O'connor, Patrick J — Healthpartners Institute
- Study coordinator: O'connor, Patrick J
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.