Improving care for individuals with spina bifida
Woodward CDC NSBPR Registry 2018
['FUNDING_U01'] · CINCINNATI CHILDRENS HOSP MED CTR · NIH-11141529
This study is all about finding the best ways to care for people with spina bifida so that they can live healthier and happier lives, and it’s designed to help doctors provide the best support from childhood through adulthood.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CINCINNATI CHILDRENS HOSP MED CTR (nih funded) |
| Locations | 1 site (CINCINNATI, UNITED STATES) |
| Trial ID | NIH-11141529 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the quality of care for individuals with spina bifida by identifying and standardizing best clinical practices. It involves collecting and analyzing longitudinal data from multidisciplinary spina bifida clinics to understand variations in care and health outcomes. The goal is to promote early identification of complications and timely interventions that improve health and quality of life. By disseminating evidence-based practices, the research aims to support healthcare providers in delivering optimal care across the lifespan of patients.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with spina bifida and their families seeking coordinated, high-quality care.
Not a fit: Patients without a diagnosis of spina bifida or those who do not require multidisciplinary care may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for individuals with spina bifida.
How similar studies have performed: Previous research has shown success in improving care practices for chronic conditions through standardized approaches, indicating potential for this initiative.
Where this research is happening
CINCINNATI, UNITED STATES
- CINCINNATI CHILDRENS HOSP MED CTR — CINCINNATI, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: WOODWARD, JASON F — CINCINNATI CHILDRENS HOSP MED CTR
- Study coordinator: WOODWARD, JASON F
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.