Improving care for individuals with spina bifida
Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida- Component B
This study is looking at how to improve healthcare for people with spina bifida by using information from a national registry, so we can find the best ways to help both kids and adults feel better and live healthier lives.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project ID | NIH-11140256 on NIH RePORTER |
What this research studies
This research focuses on enhancing the quality of healthcare for individuals living with spina bifida by utilizing the National Spina Bifida Patient Registry (NSBPR). The University of Alabama at Birmingham (UAB) collects and analyzes longitudinal data from both pediatric and adult patients to identify best practices in treatment and care. By comparing outcomes across different clinics, the research aims to understand how various interventions affect patient health over time. This initiative is crucial for developing targeted strategies to improve patient outcomes.
Who could benefit from this research
Good fit: Ideal candidates for this research include children and adults diagnosed with spina bifida who are receiving care at participating clinics.
Not a fit: Patients without a diagnosis of spina bifida or those not receiving care at the participating clinics may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare practices and better health outcomes for individuals with spina bifida.
How similar studies have performed: Previous research utilizing the NSBPR has shown success in improving care and outcomes for individuals with spina bifida, indicating that this approach is both tested and effective.
Where this research is happening
Birmingham, United States
- University of Alabama at Birmingham — Birmingham, United States (Active)
Researchers
- Principal investigator: Joseph, David B — University of Alabama at Birmingham
- Study coordinator: Joseph, David B
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.