Improving care for children with vascular anomalies
Official title: Primary Care Needs for Patients with Vascular Anomalies: Improving Continuity of Care and Care Coordination in Rare Diseases
Funded at Ohio University Athens · NIH-10929502 · Data updated 2026-11-12
This study is looking at how to make healthcare better for kids with rare blood vessel problems, especially those living in rural areas, so they can get the right treatment more easily and stay healthy.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Ohio University Athens NIH-funded |
| Lab location | 1 site (Athens, United States) |
| Project start | September 15, 2023 |
| Project end | August 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $50,022 |
| NIH project number | 5R03HS029407-02 |
| Project ID | NIH-10929502 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children diagnosed with vascular anomalies, particularly those living in rural communities.
✕Less likely to help
Patients without vascular anomalies or those who do not require specialized care coordination may not benefit from this research.
What this research studies
This research focuses on enhancing the care coordination for children suffering from vascular anomalies, which are rare congenital disorders that can lead to serious health issues if not properly managed. The study aims to identify the barriers and facilitators to effective care for these patients, particularly those living in rural areas where access to specialists is limited. By understanding the challenges faced by families, the research seeks to improve the continuity of care between primary care providers and specialized treatment centers, ensuring that children receive timely and appropriate medical attention.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and quality of life for children with vascular anomalies by ensuring they receive better coordinated care.
How similar studies have gone: While there is limited research specifically on vascular anomalies, similar studies in care coordination for rare diseases have shown promise in improving patient outcomes.
Where this research is happening
-
Ohio University Athens
Athens, United States Active
Researchers
- Principal investigator: Kerr, Anna M. — Ohio University Athens
- Study coordinator: Kerr, Anna M.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.