Improving care for Black preterm infants with chronic lung disease through parent engagement
Official title: Addressing Racial Disparities in Chronic Lung Disease for Preterm Infants Through Parent Engagement
Funded at Johns Hopkins University · NIH-10948795 · Data updated 2026-11-12
This study is all about helping Black preterm babies with chronic lung disease and their families by listening to their experiences and figuring out what challenges they face, so we can create better care and support for them.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Johns Hopkins University NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project start | August 15, 2024 |
| Project end | July 31, 2029 |
| Funding year | 2024 |
| Award (this year) | $196,441 |
| NIH project number | 1K23HL175236-01 |
| Project ID | NIH-10948795 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are Black preterm infants diagnosed with chronic lung disease and their parents or caregivers.
✕Less likely to help
Patients who are not preterm infants or do not identify as Black may not receive direct benefits from this research.
What this research studies
This research focuses on understanding and addressing the challenges faced by Black preterm infants diagnosed with chronic lung disease (CLD) and their families. It aims to engage parents in the care process to improve health outcomes by exploring their lived experiences and the social factors affecting their children's health. The study will characterize the medical needs and social determinants impacting these infants and identify those at the highest risk for respiratory issues. By involving a diverse advisory board, including Black parents, the research seeks to create equitable health interventions tailored to this vulnerable population.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and reduced disparities for Black preterm infants with chronic lung disease.
How similar studies have gone: Previous research has shown that patient and family engagement can significantly improve health outcomes, particularly in pediatric populations, suggesting a promising approach in this context.
Where this research is happening
-
Johns Hopkins University
Baltimore, United States Active
Researchers
- Principal investigator: Smith, Brandon — Johns Hopkins University
- Study coordinator: Smith, Brandon
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.