Improving care discussions for patients with Alzheimer's disease and their families
Hybrid efficacy-effectiveness trial to promote goals-of-care discussions for patients with Alzheimer's disease and related dementias and their family caregivers
This study is looking to improve how families talk about care goals with loved ones who have Alzheimer's or related dementias by using a special program called Jumpstart, so that everyone can feel more connected and make sure the care matches what the patient wants.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Washington NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project ID | NIH-10898719 on NIH RePORTER |
What this research studies
This research aims to enhance conversations about care goals between patients with Alzheimer's disease and related dementias (ADRD) and their family caregivers. By utilizing electronic health records, the study will identify patients who could benefit from these discussions and implement a communication-priming intervention called Jumpstart. The goal is to increase the frequency and quality of these important conversations, ensuring that care aligns with the patients' values and preferences. The study will compare the effectiveness of this intervention against usual care practices in outpatient settings.
Who could benefit from this research
Good fit: Ideal candidates for this research include patients aged 21 and older diagnosed with Alzheimer's disease or related dementias, along with their family caregivers.
Not a fit: Patients who are not diagnosed with Alzheimer's disease or related dementias may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more personalized and appropriate care for patients with Alzheimer's disease and their families, improving their overall quality of life.
How similar studies have performed: Previous research has shown that structured goals-of-care discussions can significantly improve patient and family outcomes, indicating that this approach has potential for success.
Where this research is happening
Seattle, United States
- University of Washington — Seattle, United States (Active)
Researchers
- Principal investigator: Kross, Erin Kathryn — University of Washington
- Study coordinator: Kross, Erin Kathryn
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.