Improving care and outcomes for young children with Spina Bifida in Wisconsin
Official title: Improving the Urologic Care and Outcomes of Young Children with Spina Bifida in Wisconsin
Funded at Children's Hospital of Wisconsin · NIH-11616593 · Data updated 2026-11-12
A patient-friendly project aims to improve how doctors care for and outcomes for young children with spina bifida in Wisconsin.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hospital of Wisconsin NIH-funded |
| Lab location | 1 site (Milwaukee, United States) |
| Project start | September 1, 2019 |
| Project end | August 31, 2027 |
| Funding year | 2019 |
| Award (this year) | $42,000 |
| NIH project number | 6U01DD001239-05M004 |
| Project ID | NIH-11616593 on NIH RePORTER |
Who could benefit from this research
✓Could help
Young children diagnosed with spina bifida and their families in Wisconsin.
✕Less likely to help
Children without this condition or located outside Wisconsin are unlikely to benefit.
What this research studies
This program focuses on better medical care for kids with spina bifida in Wisconsin, led by Eileen Sherburne at the Children’s Hospital of Wisconsin. It involves coordinated clinical efforts to enhance treatment and follow-up for affected children. The project will collect information from participating patients and use it to guide improvements in care pathways and outcomes over several years. Families may experience changes in how appointments, therapies, and supports are organized to benefit their child’s health and quality of life. The study keeps patients at the center by aiming to translate findings into practical changes in everyday clinical practice.
Why it matters
Potential benefit: If successful, children with spina bifida could receive more consistent, higher-quality care and better health outcomes.
How similar studies have gone: Prior work shows that coordinated, state-wide care programs can improve outcomes for children with complex congenital conditions.
Where this research is happening
-
Children's Hospital of Wisconsin
Milwaukee, United States Active
Researchers
- Principal investigator: Sherburne, Eileen — Children's Hospital of Wisconsin
- Study coordinator: Sherburne, Eileen
Related research
Other NIH-funded projects on the same topics.
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Improving care and outcomes for people living with spina bifida in Wisconsin
A patient-friendly project aims to improve everyday care and health outcomes for people with spina bifida in Wisconsin.
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The National Spina Bifida Patient Registry at University of Pittsburgh
A national registry project at the University of Pittsburgh aims to collect and organize information about people with spina bifida to improve care.
-
Improving Care and Outcomes for People Living with Spina Bifida
A patient-friendly project aims to improve how people with spina bifida are cared for and how well they do over time.
-
Scoliosis and neurosurgical factors in myelomeningocele: a clinic registry study
This project uses registry data from Penn State’s Spina Bifida Clinic to understand how brain and spine-related issues influence when and why scoliosis surgery is needed in people with myelomeningocele.
-
UMPIRE: Better Urologic Care for Babies with Spina Bifida
This grant tests how to best protect kidney function in newborns with spina bifida by comparing and refining urologic care practices across multiple hospitals.
-
Spina Bifida Collaborative Care Network to Improve Outcomes
A national program is expanding coordinated care networks and a patient registry to help people with Spina Bifida get better, more consistent care.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.